Little Mix star Jesy Nelson has marked the first birthday of her twins with a heartfelt post after the little ones were faced with a shock diagonis earlier this year
Jesy Nelson “cannot believe” that her twins have reached their first birthday, The singer, 34, announced earlier this year that Ocean Jade and Story Monroe Nelson were diagnosed SMA1 (spinal muscular atrophy), a genetic condition which causes progressive muscle wastage.
The former Little Mix star marked the babies’ first birthday on Friday and shared a heartfelt video on Instagram where she recited the poem Welcome To Holland by Emily Perl Kingsley which describes what it feels like to raise a child with a disability.
She celebrated the twins, describing them as the “strongest most resilient little fighters I’ve ever known” in a heartfelt caption, adding: “I cannot believe it has been a whole year since having my beautiful baby girls. They have been through so much. There will never be enough words to describe just how incredible they actually are.
READ MORE: Jesy Nelson issues emotional update about her twins after devastating diagnosisREAD MORE: Jesy Nelson shares rare picture of twin daughters after their medical equipment is stolen
“My tiny little super humans. The strongest, most resilient little fighters I’ve ever known. You inspire me and every single person that ever meets you both.
“One whole year old today what a mile stone to reach. I read this poem a little while ago by Emily Perl Kingsley ‘Welcome to Holland’ and I think this sums up their journey so beautifully. Happy Birthday my Ocean and Story you are my whole heart and soul I love you more than you will ever know.”
According to the NHS, SMA causes muscle weakness, movement problems, issues with breathing and swallowing, muscle tremors, and bone and joint problems.
In January, Jesy revealed that her daughters’ diagnosis meant they are unlikely to be able to walk or regain their neck strength.
She has since been campaigning for the condition to be added to the newborn blood spot screening test as early treatment can help avoid some of its most devastating effects.
Jesy, who shot to fame alongside Leigh-Anne Pinnock, Perrie Edwards and Jade Thirlwall when they became the first group to win The X Factor in 2011, met with the former Health Secretary Wes Streeting in January to speak about the life-changing impact early detection of the condition could have had on her twins and in April visited 10 Downing Street. She also became a patron of the charity SMA UK in February.
Like this story? For more of the latest showbiz news and gossip, follow Mirror Celebs on TikTok , Snapchat , Instagram , Twitter , Facebook , YouTube and Threads .
Disclaimer : This story is auto aggregated by a computer programme and has not been created or edited by DOWNTHENEWS. Publisher: mirror.co.uk
